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Cancer Communication Research Center
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CRN-CCRC is on Twitter!

You can follow the Cancer Research Network Cancer Communication Research Center on Twitter at twitter.com/CRNCCRC. Here, you can see what's new with the group, who we are following, and news from all around the country and world on cancer communication issues. Beginning on Monday, October 8, we will be tweeting from the annual Center of Excellence in Cancer Communication Research (CECCR) meeting in Madison, WI. All members of the CECCR (CRN-CCRC, Washington University in St. Louis, University of Michigan, University of Pennsylvania, University of Wisconsin) will gather to discuss their work and current issues in the field of cancer communication. We'll see you on Twitter!

Written by CCRC at 10:07

Henton

It goes without saying that the Internet has been essential when it comes to providing information about cancer. One Google search with the word "cancer" yields over 700 million results. Even with all of this available information, there is one group that is underrepresented in the cancer conversation: adolescents and young adults (AYA). That is quickly changing, thanks to the popularity of social media. Formats like Facebook, Twitter, and personal blogs have not only provided a way for AYA cancer patients to find information, it has also provided them an outlet to discuss their thoughts, fears, successes, and find other AYAs who they can connect with. The New York Times has an online health series called Well, where Suleika Jaouad, a 23 year old woman who was diagnosed with leukemia in March, blogs about her experiences with her diagnosis, treatment, and daily struggles. She discusses her "inbetweenness" in her treatment, meaning she's too old for the pediatric unit, but much younger than most of the patients she is surrounded by. She also candidly discusses her relationships with her doctors, family and friends, and their changing relationship with her. It's a very real and intimate portrayal of how she is trying to navigate a life that is unlike most young adults, but in a format that is accessible and visible to those who are going through a similar experience.

Michelle Henton
Senior Research Assistant, CCRC
KPCO

Written by CCRC at 11:31

Dearing

Research about sustainability is becoming a hot topic. The Brown School of Social Work at Washington University hosts a sustainability research conference beginning today, February 9. This is a topic that has never achieved much attention on the agendas of researchers or funders, but that condition may be shifting. This conference features Ross Brownson, Enola Proctor, and Doug Luke from Wash U, and adds researchers such as Jill Marsteller, Kurt Stange, and Phyllis Panzano who will discuss cases of sustained programs and the factors that led to their continuation. Program officers from CDC, NIMH, NIDA, and NCI will take part, too. Perhaps a large part of the lack of funded projects that explicitly study sustainability is that the timelines required to study long-term effects are, well, long. This will be a prime obstacle in creating a research agenda about sustainability, but it may also force consideration of alternative study designs.

Jim Dearing
Director/PI, CCRC
KPCO

Written by CCRC at 11:36

Training in Dissemination and Implementation Research

Rahm

Recently, the NIH sent out a call for applications to attend the second annual Training Institute in Dissemination and Implementation Research in Health. This is a week-long intensive training in dissemination and implementation (D&I) science taught by leading experts in the field. As an alumnus of the first annual TIDIRH in 2011, I would highly recommend this institute experience for any new scientist working in D&I. The expert faculty have been at the front lines of D&I research for many years, and the institute venue provides for both didactic and personal training from these experts. During the 5 days of the institute, you will have access to the faculty breakfast, lunch, and dinner in small conversational groups during the meals. During last year's institute, the faculty were flexible and modified the didactic portion on the fly to accommodate our needs and wishes for the training experience.

This year's training will be held in San Jose, California in early July. Having been to California infrequently, I cannot hazard a guess as to the weather at that time of year, however, you will probably willingly stay indoors to take advantage of all the institute has to offer. At the end of the institute, you will be sent home with an arsenal of tools and information to help you not only further your own career in D&I but to spread the word to others as well.

Good luck and best wishes!

Alanna Kulchak Rahm
Staff Researcher, CCRC
KPCO

Written by CCRC at 11:38

A recent New York Times article discussed one debate in the medical community about the word "cancer." The article addressed those who are diagnosed with Stage 0 cancer, where cells are found to be abnormal, but do not pose an immediate threat of spreading or becoming more threatening.

Susana's blog from December 22 addressed patient uncertainties surrounding cancer communication in prevention, screening, and treatment. When discussing results with a patient, even using the words "abnormal cells" can strike fear and anxiety in a patient. While clinicians need to communicate clearly to the patient what their diagnosis means to help reduce uncertainty, should Stage 0 cancer still be called cancer? If not cancer, what should it be called?

Michelle Henton
Senior Research Assistant, CCRC
KPCO

Written by CCRC at 12:47

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